The Most Wonderful Time Of The Year.....???

I love and hate this time of year.  Don't get me wrong, I love Christmas and everything that goes with it, except it is this same time of year that my Crohn's wants to give me a 'present'.  It's a present I don't want.
Every year, something goes awry with my Crohn's.  This year, I ended up in the ER with a peri-anum abscess which they were able to drain without major surgery.  Still had to be put out in the ER and had problems sitting for about a week, but why o why does this happen every Christmas?  I've been racking my brain for years trying to figure it out and the only thing I can come up with is that it's the stress.  Too much 'stuff' going on this time of year.  Too much to 'worry' about.  Kids, work, family, food, etc., etc,.
Everything seems to have settled now.  Or is it just dormant, ready to rear it's ugly head next Christmas........

Crohnie Christmas

I posted this a couple of years ago and I thought I would do it again.
Merry Christmas to all my IBD family!!


Don't know who wrote it, but I give them two thumbs up.  And there is a language warning before you read......but enjoy!

'Twas the night before Christmas and everyone waited with glee
Except for the one in the bathroom-I have CD.
The Charmin was hung by the toilet with care
In hopes that I'd reach it before ruining more underwear.
I started at night when I was snug in my bed,
Those rumblings I heard were not in my head.
I'd been looking forward to a long, restful nap
But had to get up for a much needed crap
When out on the lawn, there arose such a clatter,
I exited the crapper to see what was the matter!
I opened my door, and it hit like a flash…
This god-awful stench-I fell on my ass.
I opened my window and threw up in the snow
It covered the nativity scene down below.
And what to my bloodshot eyes should appear
But a miniature sleigh with some tiny reindeer.
A decrepit old driver, not lively or quick,
I knew in a moment it must be St. Nick.
Slowly-with effort, those reindeer, they came
As he whistled and shouted and called them by name:
"Now, Crohn's! Now, Colitis! Now J-Pouch and Ostomy!
On, Hemorrhoid! On, Fissure! On, Stool O Bloody!
To the top of the house, to the top of the wall!
Now dash, little bastards, and don't let me fall!"
And then, in an instant, I heard on the roof
The scratching and farting of that big, ol' dumb goof.
As I drew in my head, and was turning around,
Down the chimney St. Nicholas came with a bound.
He was dressed all in red, from his head to his toe,
And he smelled like hell…he really had to go.
A bundle of toys he had flung on my couch.
He winked at me and said, "Wanna see my J-Pouch?"
His eyes-how they twinkled as he let out a fart.
It smelled worse than mine-nearly stopped my dear heart!
His droll little mouth was drawn up like a bow,
If not for the beard, it'd resemble an @#%$!
The bags under his eyes-I saw the fatigue
That comes from living with Crohn's or UC.
Plus a bad case of D had filled his round belly,
And shook when he farted-it was oh, so smelly.
He was chubby and plump; he screamed at his elf.
I laughed when I saw this, in spite of myself.
The moon face, the mood swings-the twitch of his head,
I knew right away…side effects of the Pred.
He spoke not a word, but went straight to the bathroom
And filled my toilet with a *splat* and a VVVAROOOMMMMM!
Using his finger to close up his nose,
And giving a nod, up the chimney he rose.
He sprang to his sleigh; he weighed ten pounds less.
And thanking me for the Charmin, he apologized for the mess.
As I heard him cry out, I realized he knew of our plight:
"HAPPY CHRISTMAS!
"I'VE IBD TOO, AND I'M HAVING ONE HELL OF A NIGHT!"

12 Days Of A Crohnie Christmas : Day 12

On the twelfth day of Christmas, my Crohns Disease gave to me.........
...12 rolls of toilet paper,

11 packs of underwear,
10 visits to the ER,
9 blood tests,
8 B12 shots,
7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses

and a painful colonoscopyyyyyyyyyyyyyyyyyyyyyyyyyyyyy!

Merry Christmas!!!

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12 Days Of A Crohnie Christmas : Day 11

On the eleventh day of Christmas, my Crohns Disease gave to me.........
...11 packs of underwear,

10 visits to the ER,
9 blood tests,
8 B12 shots,
7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.

12 Days Of A Crohnie Christmas : Day 10

On the tenth day of Christmas, my Crohns Disease gave to me.........
...10 visits to the ER,

9 blood tests,
8 B12 shots,
7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.

12 Days Of A Crohnie Christmas : Day 9

On the ninth day of Christmas, my Crohns Disease gave to me.........
...9 blood tests,

8 B12 shots,
7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.

12 Days Of A Crohnie Christmas : Day 8

On the eighth day of Christmas, my Crohns Disease gave to me.........
...8 B12 shots,

7 different doctors,
6 Remicade infusions,
5 fistulaaaaaaaaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.

12 Days Of A Crohnie Christmas : Day 7

On the seventh day of Christmas, my Crohns Disease gave to me.........
...7 different doctors,

6 Remicade infusions,
5 fistulaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.

12 Days Of A Crohnie Christmas : Day 6

On the sixth day of Christmas, my Crohns Disease gave to me.........
...6 Remicade infusions,

5 fistulaaaaaaaaaa's,
4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.

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12 Days Of A Crohnie Christmas : Day 5

On the fifth day of Christmas, my Crohns Disease gave to me.........
...5 fistulaaaaaaaaaa's,

4 kidney stones,
3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.

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12 Days Of A Crohnie Christmas : Day 4

On the fourth day of Christmas, my Crohns Disease gave to me.........
...4 kidney stones,

3 bone density tests,
2 peri-anal abscesses
and a painful colonoscopy.


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12 Days Of A Crohnie Christmas : Day 3

On the third day of Christmas, my Crohns Disease gave to me.........
...3 bone density tests,

2 peri-anal abscesses,
and a painful colonoscopy.


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12 Days Of A Crohnie Christmas : Day 2

On the second day of Christmas, my Crohns Disease gave to me.........
...2 peri-anal abscesses

and a painful colonoscopy.


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12 Days Of A Crohnie Christmas : Day 1

I normally do a Crohnie advent calendar, but this year, I'm doing a "12 days" instead.....

On the first day of Christmas, my Crohns Disease gave to me.........
...a painful colonoscopy.



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Struggling With Crohns ??

I get asked about how I handle having Crohn's.  The day to day, the not knowing, the pain, the frequent bathroom visits, the this, the that.
Honestly....sometimes I just want to sit and do nothing, but I know I have to get up and get going and not let the Crohn's take over.
In the beginning of my "journey" I just wanted to give up, but learned over time, that it's just one step at a time.  They are small steps, but steps all the same.
Or as this video shows.....one foot in front of the other.

http://youtu.be/OORsz2d1H7s

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Remicade : Day 497

I arrived for my infusion early, as I always do, but this time there was no one in front of me, so I got hooked up early.....awesome.
It's cold here so before I left, I heated up my hand and put gloves on.  Then when I arrived, I put my hand under a heating blanket....made my veins pop right out...awesome again.
Then I found out this infusion was lucky #13, so instead of bad or weird things happening, it was one of the best infusions.  No problem with the IV needle, quick infusion, no worries.


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Crohnie Quote Of The Day

You know your medication is expensive when even the pharmacist looks at the price and goes, "Whaaaaaaat??!!!"



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