Sunday, August 30, 2020

Colonoscopy Prep....?

 Everyone has a different approach when it come to the days leading up to a colonoscopy. 

Eat this, but not that. Drink this, but not that. Take this, but not that. Depending on your particular situation. "Normal" people who have "normal" bowels, I actually feel sorry for. They aren't use to restricting foods on a daily basis and I'm sure they feel they are "suffering" with the restrictions.

I laugh.

For IBD'ers, it's a piece of cake...so to speak. For me, I've tried the oral prep AND the enema prep but neither really worked, not sure why. I'm pretty sure it's because my small intestine is attached to my rectum, I barely have any large bowel left. Both types of prep cause me great discomfort. 

Now, I need this colonoscopy leading up to removing my rectum, anus and add an ileostomy and luckily my surgeon is doing the scope so she can look for what she needs to do from the inside. So, this is what I normally do...

Four days before the test I switch to a liquid diet. No food at all. Breakfast is black coffee or tea and jello. Lunch AND dinner is juice, water, black coffee or tea and chicken broth. That's it. In between I'll have some Gatorade. 

Now, you'd think I'd be hungry, but I'm not. With the amount of liquid intake, I "feel" full. I may not actually be full, but as long as I just have the feeling, that's what I need. Plus, I'm use to it. There have been too many times in my crohn's life that I have stopped eating. By the time my test rolls around 4 days later, there's nothing left inside me to interfere with the camera. 

This is what I DO. It may not work for others. The normal prep will probably work for everyone else, but I wanted to say, this is what I do, for me, because the normal prep doesn't work and causes great discomfort. Like we always say, what works for one may not work for another.


Sunday, August 16, 2020

Gutsy Walk 2020

 There is one more week before the Gutsy Walk  on August 23

I'm ready to go, walking around my neighborhood this year with my FitBit to track my steps. There's still time to support my walk to help with the fight against Crohn's and colitis.

You can support me here:

GutsyWalk2020/vernonlaine

Let's help make IBD (Inflammatory Bowel Disease) a thing of the past !!

Tuesday, July 28, 2020

You Might Be a Crohnie

If you have a bowel movement every morning at 8 AM, but don't wake up til 9 AM
...you might be a Crohnie

Sunday, July 26, 2020

It's in the Bag

32 years of fighting Crohn's disease has lead me to this... I need surgery for a permanent ostomy.

This is probably one of the hardest things to write about for me, it's taken me a couple of weeks to figure out what to say.
I need the surgery because of the peri anal abscesses, fissures and fistula's I have been dealing with for 30 years. I started getting them just 2 years after diagnosis. We have tried every medication attempting to fix these problems as well as deal with flares and pain.
Nothing seems to have worked, even the biologics. Remicade for 8 years and Humira since January.

My GI and I have talked about this surgery for years now, but I have learned to live with these problems most of my life and the thought of major surgery.... again... just didn't appeal to me.
I had an MRI done recently and it showed there is an abscess "collection" deep inside (that I cant feel) that has tripled in size since my previous MRI in 2017. It's not big, only about 2-3 cm, but that, and the fact my GI is concerned about the possibility of hidden cancer, made the decision for me to suck it up and get it done.

I have one of the best colorectal surgeons doing the surgery, so I feel more at ease about it. She has become and expert in the TaTME (Transanal Total Mesorectal Excision) technique and I will come out of the surgery with a permanent ileostomy and no butthole (Barbie butt).  I now have multiple tests to be done including blood work, CT scan and yet another colonoscopy. So, knowing all that, I have no idea WHEN the surgery will be.  Will I be ready? Sure...physically. I've had so many surgeries, another one is just that... another one. Will I be ready mentally? Not so sure. I haven't had major surgery in over 16 years for my 5th bowel resection and that one left me in hospital for 3 weeks. I remember the length of time to recover AFTER I got out of hospital and the thought of doing it all over again, just doesn't sit well...in my head. Every one I have talked to who have had ostomy surgery, say it is the best thing they have done for their Crohn's or Colitis and have no regrets.

And so, the next stage of my Crohn's journey begins.....


Sunday, July 19, 2020

You Might Be a Crohnie

If you haven't had a "normal" bowel movement since the 80's
... you might be a Crohnie

.

Saturday, July 11, 2020

Friday, July 3, 2020

2020 WEGO Health Awards


Endorsements are open for this year's WEGO Health Awards, recognizing health advocates for many health issues.  I would appreciate your vote, but there are hundreds of other great advocates to endorse as well.

I am nominated for:

Best in Show: Blog
Best in Show: Facebook
Patient Leader Hero

You can vote directly for me here:
https://www.wegohealth.com/crohnsguy/awards

Thanks and good luck to my fellow nominees!!


Thursday, June 25, 2020

You Might Be a Crohnie

If you think the noise from an MRI machine could be used at a Rave...
you might be a Crohnie